Advocacy
NEW YORK and MIAMI, Nov. 9, 2023 /PRNewswire/ -- The Parkinson's Foundation has announced it is accepting applications for $1 million in community grant funding. The 2024 [...]
Advocacy
Governor Ron DeSantis announced his Focus on Florida’s Future budget proposal for Fiscal Year (FY) 2
Governor Ron DeSantis announced his Focus on Florida's Future budget proposal for Fiscal Year (FY) 2024–2025. Below is the announcement [...]
Advocacy, Other
Earlier this Week the District Court Granted Summary Judgement to Catalyst in Its Lawsuit Against the FDA and this [...]
Advocacy
This afternoon, Gov. DeSantis signed three bills into law, which take effect July 1, 2024. The press conference was [...]
Advocacy, Scientific Advancements
Zevra Therapeutics’ MIPLYFFA™ (arimoclomol) Receives U.S. FDA Approval as Treatment for Niemann-Pick
MIPLYFFA is the first FDA-approved treatment for Niemann-Pick disease type C (NPC), an ultra-rare and progressive neurodegenerative disease MIPLYFFA is [...]
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